I come to you asking for PRAYERS
As most of y’all know about 4 years ago I was diagnosed with a rare disease called systemic mastocytosis. About 2 weeks ago I began to have a major flare up which consisted of full body tremors, facial dystonia and slurred speech. After being on some major meds to suppress the mast cells all of that is GONE.. big praises
For the last 4 or so days I have been dealing with my head twitching, feeling shaky and really bad stuttered speech. So, I am not in the best of shape. Just left doctors and they said My body has taken on a new way dealing with the mastocytosis
It’s presenting as severe ticks and although I thought I was stuttering it’s actually ticks in my voice.. it’s pretty BAD
My doctor is hands down AMAZING and she is doing some research on what to prescribe me to help stop this from happening (and also not to cause any more reactions as my body doesn’t respond to meds all that well) bc my body is never at rest since it’s constantly ticking
My doctor sent out a STAT referral to a neurologist but they can’t get me in until February 13th and a STAT referral to see a hematologist that specializes in this disease but cannot get in there until March 20th. PLEASE pray the neurologist gets a cancellation ASAP and that I can get in either Monday or Tuesday of next week and also for a cancellation at UT Southwestern 🙏🙏🙏
Please continue to pray for me as I am TIRED and for John and the kids. I cannot begin to tell you how is breaks my heart that these health issues are causing them so much pains. It’s sooo very hard on them, on us.
All of this to say, God is GOOD and FAITHFUL and He is truly SUSTAINING me and CARRYING me through. There is nothing that will stop me from preaching how magnificent He is, in fact, I will proclaim Him MORE and preach of His goodness LOUDER then before. I am not gonna sit here and say I am not sad or frustrate because I am, BUT what I will say is MY GOD is bigger than this and His truths and promises are REAL. They are what I hold onto and they are what brings me hope. I can find Joy in the Lord because He has already won the victory on my behalf.
I love y’all deeply and I thank you for helping my family take up this cross, praying for us and walking this journey out with us. “God uses ALL things to work together for the good of those who love him who have been called according to His purpose (Romans 8:28) I am comforted by HIM, I am comforted by His truths and I comforted knowing He is my strength, my healer and that He is the great I AM. I will use all of this as part of my testimony to lead others to the cross, that I am certain of. 💔😢🙏🙌
Y’all know my hearts greatest desire is for the MASSES to come to know HIM through all of this and that y’all would know HIM in deeper more profound ways. So, prayer warriors GET AT IT. I KNOW mountains will be moved. Praising HIM for such a time as this ❤️❤️
Isaiah 43:1-3, “But now, thus says the Lord, who created you, O Jacob, And He who formed you, O Israel: Fear not, for I have redeemed you; I have called you by your name; You are Mine. When you pass through the waters, I will be with you; And through the rivers, they shall not overflow you. When you walk through the fire, you shall not be burned, Nor shall the flame scorch you. For I am the Lord your God, The Holy One of Israel, your Savior;”